List of illustrations .......................................... xi
Notes on contributors ........................................ xiii
Acknowledgements ............................................. xxvi
1 Genetics and society: perspectives from the twenty-first
century ...................................................... 1
Paul Atkinson, Peter Glasner and Margaret Lock
Section One
Biomedical applications of new genetic technologies ............ 15
2 Introduction ................................................ 17
Susan E. Kelly
3 Biomedicalising genetic health, diseases and identities ..... 21
Adele E. Clarke, Janet K. Shim, Sara Shostak and Alondra
Nelson
4 Stem cells, translational research and the sociology of
science ..................................................... 41
Steven P. Wainwright, Clare Williams, Mike Michael and
Alan Cribb
5 Reproductive genetics: from choice to ambivalence and back
again ....................................................... 59
Anne Kerr
6 Localising genetic testing and screening in Cyprus and
Germany: contingencies, continuities, ordering effects and
bio-cultural intimacy ....................................... 76
Stefan Beck and Jörg Niewöhner
7 Nutrigenomics ............................................... 94
Ruth Chadwick
Section Two
Commercialisation ............................................. 105
8 Introduction: genomes and markets .......................... 107
Paul Atkinson
9 Making Europe unsafe for agbiotech ......................... 110
Les Levidow
10 Genetic information and insurance underwriting:
contemporary issues and approaches in the global economy ... 127
Mark A. Rothstein and Yann Joly
11 On a critical path: genomics, the crisis of
pharmaceutical productivity and the search for
sustainability ............................................. 145
Paul Martin, Michael Hopkins, Paul Nightingale and Alison
Kraft
12 States, markets and networks in bioeconomy knowledge
value chains ............................................... 163
Philip Cooke
Section Three
Representations of genomics ................................... 181
13 Introduction ............................................... 183
Maureen McNeil
14 Stakeholder representations in genomics .................... 187
Edna Einsiedel
15 Human genetics and cloning in the media: mapping the
research field ............................................. 203
Joan Haran and Jenny Kitzinger
16 Cultural imaginaries and laboratories of the real:
representing the genetic sciences .......................... 222
Suzanne Anker
17 Genes in our knot .......................................... 247
Mike Fortun
Section Four
Regulation .................................................... 261
18 Introduction: expressing the gene: the discursive and
institutional regulation of genetics ....................... 263
Andrew Webster
19 Law and regulation ......................................... 267
Sheila McLean
20 Forensic DNA databases and biolegality: the co-production
of law, surveillance technology and suspect bodies ......... 283
Michael Lynch and Ruth McNally
21 Biobanks and the challenges of governance, legitimacy and
benefit .................................................... 302
Oonagh Corrigan and Richard Tutton
Section Five
Bioethics and genetics ........................................ 319
22 Introduction ............................................... 321
Ruth Chadwick
23 Rethinking privacy in the genetic age ...................... 324
David Weisbrot
24 Bioethics and human genetic engineering .................... 349
John H. Evans and Cynthia E. Schairer
25 Towards a bioethics of disability and impairment ........... 367
Jackie Leach Scully
26 Ethical perspectives on animal biotechnology ............... 382
Mickey Gjerris, Anna Olsson, Jesper Lassen and Peter
Sandøe
Section Six
Diversity and justice ......................................... 399
27 Introduction ............................................... 401
Barbara Katz Rothman
28 Religion and nationhood: collective identities and the
New Genetics ............................................... 404
Barbara Prainsack and Yael Hashiloni-Dolev
29 Extravagance, or the good and the bad of genetic
diversity .................................................. 422
Amade M'charek
30 Eugenics ................................................... 437
Lene Koch
31 Human dignity and biotechnology policy ..................... 448
Ubaka Ogbogu and Timothy Caulfield
Section Seven
New forms of knowledge production ............................. 463
32 Introduction ............................................... 465
Alberto Cambrosio
33 Centralising labels to distribute data: the regulatory
role of genomic consortia .................................. 469
Sabina Leonelli
34 Innovative genetic technologies, governance and social
accountability ............................................. 486
Andrew Webster
35 Genomic platforms and hybrid formations .................... 502
Alberto Cambrosio, Peter Keating, Pascal Bourret, Philipe
Mustar and Susan Rogers
Index ......................................................... 521
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